A
benefit is being held today at the Veterans' Memorial
Home, Route 155 South, Port Allegany, from 11:00am - 5:00pm.
Young Bradley was born one year
ago, to Nicole and Fran Ludwig, formerly of Port Allegany. He was several weeks early, but
appeared healthy.
Bradley has suffered from
excessive vomiting, constipation and lack of weight gain. Through many tests, he still has doctors
baffled on his issues. In May, Bradley had a Nissen Fundoplication surgery to stop the
vomiting and help heal the esophagus. At the time of this surgery, he also had
a G-Tube placed in his abdomen. Bradley is fed only through the tube due to
aspiration. Bradley is currently in eating therapy to strengthen the esophagus so that he can eventually be fed through his
mouth. Bradley also has a growth hormone deficiency and at a year old weighs
around 13 pounds. He is given a growth hormone shot at home, daily. The growth
hormone is not helping at this point. He is hypoglycemic and has to have his
sugar checked several times a day. His sugar fluctuates all day and he
struggles to stay within a normal range even an hour after being fed.
Some other diagnosis that
Bradley has at this time include hypotonia in his upper extremities, failure to
thrive, and a 145kb deletion in band 1q25.2 chromosome 1. He cannot sit for
more than a minute without support and cannot bare weight on his legs. He will
be getting tubes placed in his ears due to chronic ear infections. He takes
several medications a day, most of which are not covered by insurance.
The Dr's in GA, where he
currently lives, are stumped and he has been referred to CHOP (Children's
Hospital of Philadelphia). Unfortunately Bradley's parents cannot afford to
just pick up and relocate to PA. Bradley has two older brothers and they are a
one income family. We are holding this benefit to help with expenses while they
are in the hospital.
For those wanting to financially support Bradley and his family, you can do so on the Go Fund Me page: http://www.gofundme.com/iq36ik
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